This is the day of her baby blessing.
She looks so pretty for every body!
Uncle Ransom, Terry Attkisson, Travis (of course), and Mark Love were in the circle.
I forgot
10 years ago
Wednesday, May 13, 2009
She looks so pretty for every body!Uncle Ransom, Terry Attkisson, Travis (of course), and Mark Love were in the circle.
One of my favorite days! We were able to hold her for 2 days total so far but are soon hoping for more!
So sweet!
So sense her toung is swollen she can't put it all the way in her mouth most of the time, so it drys out so we get to use these little wet spunges to clean and mouisterise it, she actually loves this!
This is Great Grandma LaVon, who Shelby is named after holding her, which she did for like 3 hours, can you say baby hogger!
Yeah I know what an attractive picture of your truly, but who cares it's not really about me is it?! Anyways this is the day before they int abated her and one of the only days we could hold her.
Cute baby! Cute bow, thanks to Shelby's favorite "baby tender" Carolyn! You can see her hygroma in this picture, it kind of just goes up and down along with all her other swelling
This is her right after open heart surgery, she has 3 chest tubes which are what are draining onto the floor into those bucket things. She has 3 heart lines that go directly into her right upper chamber of her heart and that's where all her medicine goes. She also has a PD Cath which drains the extra fluid by her kidneys and of course a catheter. And her pretty Christmas tree of meds to the left and the vent to the right.
I just love her little life vest! But this is her right after surgery.
This is right after they closed her chest. Her teddy is helping hold up her tubes and she likes to hold things so I gave her a little tube to hold, so cute!
This is one of my favorite pictures, isn't she so cute! She's actually being punished in this picture because she kept pulling on her breathing tube which she did pull out once, so they put a mitten on her. Her other had has her ART line in it which is where they draw blood and keep check on her blood pressure. 
So this is her on high flow which worked for about 18 hours but she was working so hard to breath that they were affraid that she would get tired and stop, so they put her on C PAP.
This is C PAP, it's one step down from the ventlator. Don't you just love her little hat!
This is Shelby after they took out her 3 heart lines, so the black dots are from those and where her chest tubes were. The blue lines are her pacers, so in case her heart stops beating they can "jump start" her! But they actually took those out today but sorry no picture of that yet. That's also one of her many binkies but sense her toung is swollen they don't really stay in so they just sit there kind of but she likes it, so who cares! I will try to up date more but honestly I'm pretty busy. Thursday, March 12, 2009
Shelby Lavon Attkisson
So I realized that besides my family and some friends that I've happened to talked to recently no one really knows what is going on with our baby girl and honestly I've been putting off saying anything but seeing as how I'm 32 weeks along and will soon hopefully have a baby, that it's probably time to share with everyone.
When Travis and I went to our 20 week appointment thinking we were going to find out the sex of the baby we actually discovered much more, and they couldn't actually see what sex she was, lets just say she's modest! They saw some abnormalities, some kind of growth on her neck and way too much fluid, I mean like 12 cm too much in the placenta. At the time all the Doctor said was that they thought it was probably Turner's Syndrome, which they said was a chromosome disorder that usually affects women and that to find out more we would have to see a specialist that flies in from Salt Lake to the Idaho Falls hospital once a week and that he was probably want to do an amniocentesis (where they stick a huge needle in my stomach and into the placenta to get the baby's DNA). Well the next week was Christmas so we actually had to wait until December 30th to see him. He also thought it was Turner's but because of the severe conditions Shelby was in he recommended waiting on the amnio because she would probably be dead very soon, and yes he did tell us that. So we made an appointment to see him the next week... well she was still alive so we did the amnio and let me tell you I hated it. We had to wait ten days to get the results and they weren't good, she had Turner's and it was also as bad as the syndrome can get....
So brief explanation, Turner's is a chromosome disorder only affecting the x chromosome, in Shelby's case it means that she has all the right chromosome pairs except for having two Xs she only has one.
... So from then on we had appointments with the specialist every week and every week we were told that she wasn't going to make it. Well eventually they gave into the idea of her actually surviving and told us that if she did it would have to a c-section in Salt Lake at Primary Children's and that I would need to move down there about a month before the actual day of delivery.
By the way the growths on her neck are called cystic hygromas which are caused by problem in the lymphatic system, they can sometimes be removed but are likely to just grow back. Because of the complications in the lymphatic system she is also swollen every where, which I think makes her look even cuter than any other baby! Mean while they also noticed problems with her heart so they sent us to a heart specialist in Salt Lake, he discovered a few problems in her heart which will have have to be operated on but they think they can fix it. But I have appointments with him every 3 weeks and with the OB which I just met this week, which even then they were sure to inform me that Shelby will most likely not make it.
So sorry it's so long but there's really no way to shorten it but that's what is going on. I have faith that whatever happens was meant to happen and I know that no matter what I will be able to raise her some day. I feel blessed to have had the opportunity to have such a special baby, no matter how long I get to keep her.
This picture was taken two days ago it is a 3D picture of her face if you couldn't tell but I think she hates doctors, she never cooperates with them. This time they were just trying to take a picture of her face for me but as you can see it looks like she has 3 lips but really the middle on is her tongue which was out the whole time and which she kept using to lick her hand... so the picture is know of distorted because her hand was in the way the whole time and because our scanner I don't think is of the highest quality. But enjoy the love of our lives and the cutest baby ever!
When Travis and I went to our 20 week appointment thinking we were going to find out the sex of the baby we actually discovered much more, and they couldn't actually see what sex she was, lets just say she's modest! They saw some abnormalities, some kind of growth on her neck and way too much fluid, I mean like 12 cm too much in the placenta. At the time all the Doctor said was that they thought it was probably Turner's Syndrome, which they said was a chromosome disorder that usually affects women and that to find out more we would have to see a specialist that flies in from Salt Lake to the Idaho Falls hospital once a week and that he was probably want to do an amniocentesis (where they stick a huge needle in my stomach and into the placenta to get the baby's DNA). Well the next week was Christmas so we actually had to wait until December 30th to see him. He also thought it was Turner's but because of the severe conditions Shelby was in he recommended waiting on the amnio because she would probably be dead very soon, and yes he did tell us that. So we made an appointment to see him the next week... well she was still alive so we did the amnio and let me tell you I hated it. We had to wait ten days to get the results and they weren't good, she had Turner's and it was also as bad as the syndrome can get....
So brief explanation, Turner's is a chromosome disorder only affecting the x chromosome, in Shelby's case it means that she has all the right chromosome pairs except for having two Xs she only has one.
... So from then on we had appointments with the specialist every week and every week we were told that she wasn't going to make it. Well eventually they gave into the idea of her actually surviving and told us that if she did it would have to a c-section in Salt Lake at Primary Children's and that I would need to move down there about a month before the actual day of delivery.
By the way the growths on her neck are called cystic hygromas which are caused by problem in the lymphatic system, they can sometimes be removed but are likely to just grow back. Because of the complications in the lymphatic system she is also swollen every where, which I think makes her look even cuter than any other baby! Mean while they also noticed problems with her heart so they sent us to a heart specialist in Salt Lake, he discovered a few problems in her heart which will have have to be operated on but they think they can fix it. But I have appointments with him every 3 weeks and with the OB which I just met this week, which even then they were sure to inform me that Shelby will most likely not make it.
So sorry it's so long but there's really no way to shorten it but that's what is going on. I have faith that whatever happens was meant to happen and I know that no matter what I will be able to raise her some day. I feel blessed to have had the opportunity to have such a special baby, no matter how long I get to keep her.
This picture was taken two days ago it is a 3D picture of her face if you couldn't tell but I think she hates doctors, she never cooperates with them. This time they were just trying to take a picture of her face for me but as you can see it looks like she has 3 lips but really the middle on is her tongue which was out the whole time and which she kept using to lick her hand... so the picture is know of distorted because her hand was in the way the whole time and because our scanner I don't think is of the highest quality. But enjoy the love of our lives and the cutest baby ever!
Tuesday, January 27, 2009
Famliy Fun!
I'm sorry it's been so long sense I've updated but I've been distracted. I still wanted to share some of the pictures I got when some of my family came to visit us the beginning of January... my mom, Aaron, Jessie, and Brooke came up to visit! We had so much fun!
Luckily it was just in time to celebrate my mom's 29th birthday again which I think we've been doing for 20 or so years! I made her a lemon cake with lemon frosting and we had lemon custard with it (yummy)!
And if you can't tell Brooklyn is like the cutest baby ever! We didn't have any toys so she played with an old remote, a new toothbrush and the box for the toothbrush the whole time and she was just perfect!
We took them to Big Jud's which is a local burger joint where they serve 1 lb hamburgers and if you eat on you get your picture on the wall... and of course Aaron just had to get his picture up there!Before...
After...
I think next time he comes he should try the double because even after finishing that he ate his fries and a waffle come! We had so much fun! And were so happy to have them come and visit, it can get very lonely in Idaho!
Saturday, December 20, 2008
Merry Christmas...
We just wanted to say Merry Christmas to all our wonderful family and friends! Thank you so much to everyone for being so great to us! We are blessed to have the nicest families ever! Who are so generous, kind and loving! It is wonderful to have every one's support through this time in our lives! I want everyone to know that we both see our up coming challenges only as unattained blessings and can not wait to receive the greatest blessing of all, parenthood! Thank you everyone for everything! WE LOVE YOU!
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